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2004 Jordan Institute
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Vol. 9, No. 2
January 2004

References for the Issue on Working with Parents Who Have Cognitive Limitations

Accardo, P. J. & Whitman, B. Y. (1990). Children of parents with mental retardation: Problems and diagnoses. In B. Y. Whitman and P. J. Accardo (Eds.), When A Parent Is Mentally Retarded. pp. 123-131. Baltimore, MD: Paul H. Brookes Publishing.

American Association on Mental Retardation. (1992). Mental retardation: Definition, classification, and systems of supports, 9th Edition. Washington, DC.

Arc. (1982). The prevalence of mental retardation (out-of-print). Please visit <>

Arc. (1999). Introduction to mental retardation [Publication #101-2]. Online <>

Booth, T. & Booth, W. (1993). Parenting with learning difficulties: Lessons for practitioners. British Journal of Social Work, 23, 459–480.

Booth, T. & Booth, W. (1995). For better, for worse: Professionals, practice and parents with learning difficulties. In T. Philpot and L. Ward (eds.), Values and Visions: Changing Ideas in Services for People with Learning Difficulties. pp. 290-303. London: Butterworth-Heinemann.

Booth, T. & Booth, W. (1998a). The adult children of parents with learning difficulties. Impact, 11(1), 18-19. Online <>

Booth, T. & Booth, W. (1998b). Chapter 5: Risk, Resilience and Competence. In Growing Up with Parents Who Have Learning Difficulties. London: Routledge.

Brooks, R. (1998). How small initiatives make a difference. Impact, 11(1), 4-5. Online <>

Carlson, B. E. (1998). Domestic violence in adults with mental retardation: Reports from victims and key informants. Mental Health Aspects of Developmental Disabilities, 1(4), 102-112.

Doyle, J. (2003). Personal communication. Asheville, NC.

Edgerton, R. B. (1967). The cloak of competence: Stigma in the lives of the mentally retarded. Berkeley: University of California Press.

Edgerton, R. B. (2001). The hidden majority of individuals with mental retardation and developmental disabilites. In A. J. Tymchuk, K. C. Lakin, & R. Luckasson, (eds.). The Forgotten Generation: The Status and Challenges of Adults with Mild Cognitive Limitations. pp. 3–20. Baltimore: Paul H. Brookes.

Espe-Sherwindt, M., Kerlin, S. L., Beatty, C. L., & Crable, S. (1990). Parents with special needs/mental retardation: A handbook for early intervention. Cincinnati, OH: Project CAPABLE.

Feldman, M., Case, L., Rincover, A., Towns, F. & Betel, J. (1989). Parent education project III: Increasing affection and responsivity in developmentally handicapped mothers. Journal of Applied Behavioral Analysis, 22(2), 211-22.

Field, M. A. & Sanchez, V. A. (1999). Equal treatment for people with mental retardation: Having and raising children. Cambridge, MA: Harvard University Press.

Floor, L., Baxter, D., Rosen, M., & Zisfein, L. (1975). A survey of marriages among previously institutionalized retardates. Mental Retardation, 13(2), 33-37.

Fujiura, G. T. & Yamaki, K. (1997). Analysis of ethnic variations of developmental disability prevalene and household economic status. Mental Retardation, 35(4), 286–294.

Gardner, H. (1993). Multiple Intelligences: The theory in practice. New York: Basic Books.

Ingram, D. (1990). Parents who have mental retardation. The Arc. Online <>

Kane, W. M., Avila, M. M., & Rogers, E. M. (2001). Community and culture: World views and natual affiliations as the basis of understanding, trust, assistance, and support. In A.J. Tymchuk, K.C. Lakin, & R. Luckasson, R. (Eds.). The Forgotten Generation: The Status and Challenges of Adults with Mild Cognitive Limitations. pp. 55-83. Baltimore: Paul H. Brookes.

Keltner, B. (1998). Mothers with developmental disabilities: Common issues and needs. Impact, 11(1), 4-5. Online <>

Keltner, B. R., & Tymchuk, A. J. (1992). Reaching out to mothers with mental retardation. Maternal Child Nursing, 17(3), 136–140.

Llewellyn, G., McConnell, D., & Bye, R. (1998). Perception of service needs by parents with intellectual disability, their significant others and their service workers. Research in Developmental Disabilities, 19(3), 245-260.

Lumley, V. A., Miltenberger, R. G., Long, E. S., Rapp, J. T., & Roberts, J. A. (1998). Evaluation of a sexual abuse prevention program for adults with mental retardation. Journal of Applied Behavioral Analysis, 31(1), 91-101.

Mandeville, H. (1998). What parents want in support services. Impact, 11(1), 9. Online <>

Massey, P. S. & McDermott, S. (1996). State-specific rates of mental retardation - United States, 1993. Morbidity and Mortality Weekly Report, January 26, 1996 / 45(03), 61-65. Online <>

Mattison, M. (1979). Parenting classes for the mentally retarded. Mental Retardation, 17, 195-196.

Nabinger, D. (2003). Personal communication. Asheville, NC.

Pennell, J. (2003). Personal communication with director of NC Family-Centered Meetings Project. Asheville, NC.

Quinn, L. (2003). Personal communication with consultant psychologist, Families on the Grow, Wake County Human Services. Raleigh, NC.

Railey, J. & Begos, K. (2002). Against their will: North Carolina's sterilization program. Winston-Salem Journal. Online <>

Ray, N. K. & Rubenstein, H. (1994). Understanding the parents who are mentally retarded: Guideines for family preservation programs. Child Welfare, 73(6), 725-743.

Realon, R. (November 13, 2003). Personal communication with representative of the N.C. Division of Mental Health, Developmental Disabilities, and Substance Abuse Services. Raleigh, NC.

Revis, M. (October 14, 2003). Personal communication. Asheville, NC.

Sifonis, C. (2003). Intelligence. Oakland, CA: Psychology Dept., Oakland University. Online <>

Simensen, R. J. & Fisch, G. S. (2003). Mental retardation. In Dambro, M. R. (Ed.) Griffith's Five-Minute Clinical Consult, A Reference for Clinicians. Online <>

Simpson, M. D., Roecklein, S. W., & Kerber, B. L. (1998). Supporting fathers with cognitive limitations. Impact, 11(1), 12-13. Online <>

Thompson, A. W. (1984). The assessment and remediation, through play therapy, of parenting competencies of mentally retarded mothers. Dissertation Abstract International, 45(61), July. p. 379.

Tymchuk, A. J. (1990). Parents with mental retardation: A national strategy. A white paper prepared for the President's Committee on Mental Retardation. Journal of Disability Policy Studies, 1, 43-55.

Tymchuk, A. J. (2001). Family life: Experiences of people with mild cognitive limitations. In A. J. Tymchuk, K. C. Lakin, & R. Luckasson, (eds.). The Forgotten Generation: The Status and Challenges of Adults with Mild Cognitive Limitations. pp. 249-274. Baltimore: Paul H. Brookes.

Tymchuk, A. J., Lakin, K. C., & Luckasson, R. (2001). The forgotten generation: The status and challenges of adults with mild cognitive limitations. Baltimore: Paul H. Brookes.

Welner, M. (2003). Testimony before Texas State House of Representatives Committee on Criminal Jurisprudence [Re: HB 614]. Online <>

Whitman, B. Y., Graves, B. & Accadaro, P. J. (1989). Parents learning together I: Parenting skills training for parents with mental retardation. In B. Y. Whitman and P. J. Accardo (Eds.), When a Parent is Mentally Retarded. pp. 51-66. Baltimore: Paul H. Brookes.

Supplemental Bibliography
Provided courtesty of Danielle Nabinger, Child Welfare Institute